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At age 39, healthcare executive Sheila Kolt’s world shifted when she discovered she was a ‘previvor’ - someone genetically predisposed to getting cancer. As someone with a family history of cancer, she had advocated for genetic testing. After five years of doctors visits and screenings, she makes the decision to undergo a double mastectomy and salpingo-oophorectomy - preventative surgeries to reduce her risk of breast and ovarian cancer. When Sheila’s post-surgical biopsy shows precancerous lumps in her breast tissue, she realises made the decision just in time. Throughout this process, Sheila navigates health insurance costs and the United States healthcare system.
“Nobody wants to have a genetic mutation,” says Sheila Kolt. “But taking preventative measures took a huge weight off my back - and stopped me always looking over my shoulder.”
The film's goals are:
- to educate people with a family history of cancer to advocate for early genetic testing;
- provide information tailored to a previvor’s needs;
- and build a community where previvors can share their stories.
“With this documentary, we want to create and support a community around genetic testing and show people how to take the reins in their own healthcare journey.”” says Fredric King. “As our healthcare system has shifted into an impersonal, drive-through model, being your own advocate isn't just smart, it’s essential.”
The documentary features Sheila’s intimate video diaries as well as interviews with her care team at Memorial Sloan Kettering. Other experts include geneticists, leading BRCA researchers, and a reconstructive surgeon. Anticipated interviews include NIH researcher Dr. Mary-Claire King, who discovered the BRCA 1 gene, and additional public figures, who shape the conversation around genetic testing.
Viewers will eventually be able to access the film through a modular mobile app, designed to guide individuals through relevant information tailored to their own demographic and health circumstances. This digital platform will also house extended interviews with experts and offer a space for community sharing.
Watch the teaser now and join the movement toward awareness, advocacy and action.
ABOUT THE FILMMAKERS
Fredric King is a director, producer and executive producer. His credits include Sound of Metal, Blue Valentine, and SWOON: Fearless.
Sheila Kolt, LCSW, CMC, is a healthcare executive and advocate with decades of experience in elder care, mental health, and oncology. She serves as President of the NY Chapter of the Aging Life Care Association.
For press inquiries or to get involved, please contact:
[email protected]
Fredric King
Fountainhead Films, Inc.
[email protected]
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